On October 5-6, 2018, the National LGBT Cancer Network and Whitman-Walker Health convened a summit of invited experts to review the published literature on LGBTQIA+ cultural competence trainings for healthcare and human service providers; to discuss their own experience and the experience of their institutions with such trainings; and to identify recommended and best practices.
Invited participants were selected to achieve a diversity of professions and roles within the healthcare system (providers, researchers, professional educators, researchers, and patient advocates) and a diversity of races/ethnicities, genders and sexual orientations.
Participants in the October 2018 summit were:
Madina Agénor, ScD, MPH
Tufts University
Lauren Beach, JD, PhD
Northwestern University School of Medicine
Scott Cook, PhD
University of Chicago Medicine
Markus Bidell, PhD
Hunter College and City University of New York Graduate Center
Mandi L. Pratt-Chapman, PhD
George Washington University Cancer Center
Daniel Bruner, JD, MPP
Whitman-Walker Institute
Lawrence R. Deyton, MD, MSPH
George Washington
Kristen Eckstrand, MD, PhD
University of Pittsburgh Medical School
JoAnne Keatley, MSW
UCSF Center for Excellence in Transgender Health
Tari Hanneman, MPA
Human Rights Campaign
Cecilia Hardacker, MSN, RN, CNL
Howard Brown Health
Thomas Freese, PhD
UCLA Integrated Substance Abuse Programs; Center of Excellence on Young MSM
Liz Margolies, LCSW
National LGBT Cancer Network
Alex Keuroghlian, MD, MPH
Fenway Institute and Harvard Medical School
Frederick Kron, MD
U-Michigan and U-Virginia Medical Schools
D Magrini
Whitman-Walker
Raymond Martins, MD
Whitman-Walker Health
Kk Naimool
National LGBT Cancer Network
Barbara Warren, PsyD
Mount Sinai Health System; Icahn School of Medicine at Mount Sinai
Asa Radix, MD, PhD, MPH
Callen-Lorde Community Health Center
Bamby Salcedo
TransLatin@ Coalition
Thomas Coughlin, LCPC, NCC
Whitman-Walker Health
River Lin
University of Michigan Graduate School, MHA Program
Specific issues discussed in the two-day summit, in both small-group and whole-group formats, included the content of trainings; different delivery methods and their effectiveness (e.g., webinars, lectures, videos, panel discussions with LGBTQIA+ community members, case studies and group exercises); selection and support of trainers; and methods of evaluating training outcomes.
Over the next several months, staff of Whitman-Walker and the LGBT Cancer Network reviewed and analyzed the summit notes and drafted Preliminary Best and Promising Practices, which underwent several rounds of review by summit participants. (Invited participants who were unable to attend the October summit, but who participated in the review of draft recommendations, were Ignatius Bau, JD, health policy consultant, and Michelle Eliason, PhD, San Francisco State University School of Nursing.)
In the summer and early fall of 2019, the revised draft Best and Promising Practices were circulated to more than 130 health care institutions and individual providers, academics, trainers and advocates, in an online Survey Monkey format, soliciting their detailed comments, in general and on each specific recommendation. The individuals and institutions were selected to achieve geographic diversity – including many institutions and individuals in the South, Midwest and Far West as well as from the East Coast and West Coast – and to reach many individuals and organizations focusing on care and advocacy for LGBTQ persons of color. Comments were received from 63 different institutions and individuals (listed at the end of this Appendix).
On November 8-9, 2019, Whitman-Walker and the National LGBT Cancer Network convened a second in-person summit to review the comments received from community reviewers, discuss further developments, and refine the draft recommendations. Additional experts were invited to further diversify the summit, and particularly to include more perspectives and experiences of people of color.
At the October 2018 summit, participants concluded they were insufficiently knowledgeable about the issues faced by patients with intersex traits, to determine how those issues should be addressed in cultural competence trainings. On the recommendation of interACT, the leading U.S. advocacy organization for intersex persons, we invited Dr. Susan Stred, a specialist in pediatric endocrinology and respected resource on intersex medical issues and advocate for patients with intersex traits, to attend the 2019 summit.
Participants in the November 2019 summit were:
Ignatius Bau, JD
Health policy consultant, San Francisco
Lauren Beach, JD, PhD
Northwestern University School of Medicine
Markus Bidell, PhD
Hunter College and City University of New York Graduate Center
Benjamin Brooks, JD, MPH
Whitman-Walker Institute
Daniel Bruner, JD, MPP
Whitman-Walker Institute
Scott Cook, PhD
University of Chicago Medicine
Kristen Eckstrand, MD, PhD
University of Pittsburgh Medical School
Thomas Freese, PhD
UCLA Integrated Substance Abuse Programs; Center of Excellence on Young MSM
Tari Hanneman, MPA
Human Rights Campaign
Cecilia Hardacker, MSN, RN, CNL
Howard Brown Health
Kim L. Hunt, MUPP, MPP
Pride Action Tank, AIDS Foundation Chicago
Joel Jackson
University of Chicago Medicine
D Magrini
Whitman-Walker
Charles Kamen, PhD, MPH
University of Rochester
Stacey Karpen Dohn, PhD, LPC
Whitman-Walker Health
JoAnne Keatley, MSW
UCSF Center for Excellence in Transgender Health
Alex Keuroghlian, MD, MPH
Fenway Institute and Harvard Medical School
Susan Stred, MD
SUNY Upstate Medical University
Amorie Robinson, PhD, LP
Ruth Ellis Center; Radical Well-Being Center
Liz Margolies, LCSW
National LGBT Cancer Network
Kk Naimool
National LGBT Cancer Network
Mandi L. Pratt-Chapman, PhD
George Washington University Cancer Center
Asa Radix, MD, PhD, MPH
Callen-Lorde Community Health Center
Barbara Warren, PsyD
Mount Sinai Health System; Icahn School of Medicine at Mount Sinai
At the summit, participants reviewed in detail the comments and suggestions received from community reviewers and discussed relevant developments since the previous year’s summit. A revised draft was prepared and then circulated after the summit for several rounds of review and further editing by the participants.
The revised draft was circulated for further review by advocates and service providers for specific communities:
Community
Persons with intersex traits
Persons identifying as asexual
Ballroom community in Chicago, IL
Organizational(s)/Individual(s) Consulted
interACT
Lauren Brittany Beach
Joel Jackson
COMMUNITY REVIEWERS PROVIDING COMMENTS ON THE DRAFT BEST AND PROMISING PRACTICES – SUMMER AND FALL 2019
Abigail DeVries
Piedmont Health Services, Chief Medical Director
Alexander Harris
Callen Lorde Community Health, Clinical Research Manager
Alison Gill
American Atheists (formerly at Human Rights Campaign)
Andrew Miller
Denver Health, Lead Trainer
Carl G Streed Jr
Boston University Medical School & Boston Medical Center, Physician & Asst Professor of Medicine; Research Lead, Center for Transgender Medicine & Surgery
Catherine Hofmann
QSPACES, CEO
Chris Eves
Ecumenical Ministries of Oregon, Program Manager, HIV Services
Christopher Hurt
UNC Chapel Hill School of Medicine, Assoc Professor of Medicine
Clare Madrigal
Sibley, Johns Hopkins & Frederick Memorial Hospitals, RN & LGBTQ Educator
Cori Blum
Howard Brown, Medical Director-New Initiatives
Deborah Morris-Harris
Prism Health North Texas, Chief Medical Officer
Denise Felsenstein
Ursinus College, Adjunct Lecturer
E. Taylor Doctor
National Black Justice Coalition, Director of Programs
Eli Glen Godwin
Boston Children’s Hospital/Harvard, Research Specialist, SOGI Working Group & Safe Zone
Facilitator; freelance trainer
Eli Green
Transgender Training Institute
Elyse Pine
Chase Brexton Health, Lead Physician – Trans Youth Program
Emmett Patterson
Grindr for Equality, Global Health Projects Manager
James Mcdonald
Multnomah County Health Department, Oregon, Nurse Practitioner
Jennifer Kerns
Northwest Michigan Health Services
JM Jaffe
Lyon-Martin Health Services & Trans Health Consulting
Joel Jackson*
U-Chicago Medicine, Asst Director of Inclusion & Training
Jsoue Espinoza
Massachusetts General Hospital, Administrator
Julia M. Applegate
Equitas Health Institute, Director
Julia Seay
University of Miami, Asst Research Professor
Kaitlyn Brown
Children’s Hospital at Montefiore, Genetic Counselor
Kathie Hiers
AIDS Alabama, CEO
Kathleen M. Sullivan
Portland State University & OHSU, Adjunct Professor; Internist
Kevin Hemenger
University Medical Center – New Orleans, Infectious Disease Clinic Operations Manager
Kim L. Hunt*
Pride Action Task Force, AIDS Foundation of Chicago
Kristen Porter
Zen Executive, CEO
Lauren Murray
NYC Dept of Health Division of Disease Control, Director of Program Development & Implementation
Luis Scaccabarrozzi
Latino Commission on AIDS, Vice President
Mark P Behar
Milwaukee Health Services, Family Medicine & Transgender/HIV Specialist
Michael Kauth
Department of Veterans Affairs, Director, LGBT Health Program
Michelle Ogle
Children's Hospital at Montefiore, Adolescent HIV Physician
NFN Scout
National LGBT Cancer Network
Odiel Jean-Baptiste
Careresource, Primary Care Physician
Phil Duran
JustUs Health, Director of Advocacy, Research & Education
Raimi Marx
MaeBright Group, Director of Training and Curriculum
Rebecca Kling
Formerly with National Center for Transgender Equality
Regina Washington
CenterLink, Development Officer; LGBT HealthLink, Director
Reginald Vicks
CresentCare, Chief Operations Officer
Shaunti Meyer
STRIDE Community Health Center, Medical Director
Shine Chang
U-Texas & M.D. Anderson Cancer Center, Professor & Cancer
Susan Stred
SUNY Upstate Medical University, Clinical Professor Emeritus of Pediatric Endocrinology; Summit participant
Susanna Speed
Trillium Health, Director, Program Education & Linkage
Tamilyn White
NorthLakes Community Clinic, Psychotherapist & LGBTQ Champion
Tim Johnston
SAGE, Senior Director of National Projects
Richard Finger
LifeBridge Health, HR Director, LGBTQ+ Employee Resource Group Chair
Robert Newells
AIDS Project of the East Bay, Executive Director
Ron Simmons
Consultant; Former ED of Us Helping Us (Black MSM services and advocacy)
Sabra Katz-Wise
Boston Children’s Hospital/Harvard Medical & Public Health Schools, Assistant Professor
Sarah Fogel
Vanderbilt University School of Nursing, Professor of Nursing
Sharon Demeter
UC-Davis, Nurse Practitioner
Tri Do
HealthRIGHT 360 - Lyon Martin Health Services, Medical Director
Virginia Scott
Oregon Health Sciences University, Partnership Project Social Work Specialist
Wendy [no last name]
U-Illinois at Chicago, Associate Professor
[No name]
Director of Behavioral Health [no institution given]
[No name]
Hunter College
[No name]
SAGE, Senior Director of National Projects
[No name and no affiliation] 3 responses
Total Community Reviewers Providing Responses 63
* Did not attend the October 2018 summit or participate in the initial draft; attended the November 2019 summit
ACKNOWLEDGEMENTS
This project has been made possible in part by the generous contributions of the American Medical Association Foundation and its LGBTQ Honor Fund and Gilead Sciences.